tag:blogger.com,1999:blog-1632585507201168859.post7441456689104913903..comments2024-02-08T04:23:20.884-08:00Comments on Skin of Rose - Topical Steroids & Protopic Withdrawal: TSW Event Report from Japan!Tommyhttp://www.blogger.com/profile/13556416359993220028noreply@blogger.comBlogger45125tag:blogger.com,1999:blog-1632585507201168859.post-27744705878226260582020-09-06T03:29:40.992-07:002020-09-06T03:29:40.992-07:00Hello! I've never heard Dr. Sato making any co...Hello! I've never heard Dr. Sato making any comments on Skin Repair Lotion, but he's very strict with his non-moisturiser policy. On the other hand, I read that Dr. Fukaya believes that his lotion doesn't interrupt with moisturiser withdrawal as it isn't really to moisturise skin but just add some healing components to skin. My email address is tommyskinofrose @ gmail.com , ask me any questions :)Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-66366911081898961462020-08-28T02:11:07.414-07:002020-08-28T02:11:07.414-07:00I love that you share all this info! Do you know w...I love that you share all this info! Do you know what Dr. Sato thinks of Dr Fukayas lotion? If he agrees to this method or believes that it is best to not use anything and not even the Skin repair lotion? Would it be possible to email you some questions? I can't see any contact information to you, but I can understand if you get a lot of people wanting to contact you :) Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-13210315407670485012016-02-03T12:21:08.858-08:002016-02-03T12:21:08.858-08:00Hello t delkar,
I think moisturiser withdrawal, as...Hello t delkar,<br />I think moisturiser withdrawal, as well as topical steroids withdrawal, is a long process of healing. I understand that Dr. Sato, a Japanese TSW doctor, advises not to use moisturiser practically ever again. My impression is that some people strictly follow his advice while the others decide to use moisturiser again down the line. At the moment, because your skin sounds rather unstable at the moment, I would (and I did) leave it be without using anything until it calms down better. Also, by not moisturising your skin will try to heal quicker. Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-50090168336625733382016-01-21T03:03:05.282-08:002016-01-21T03:03:05.282-08:00Hi Tommy,
I'm in my 2nd month of moisturizer w...Hi Tommy,<br />I'm in my 2nd month of moisturizer withdrawal and the area around my lips which I thought had recovered fully started to ooze again after I put a little bit of vaseline. What I want to know is, how do you know if your skin is fully recovered to be able to put moisturizers again? because usually my skin doesnt get irritated/ red when I apply moisturizer on it but the next day when I look in the mirror I see that it has oozed. My skin on my face has also oozed a bit after I thought it was done oozing even though I didnt put anything on it. I've read on some of the blogs that putting witch hazel and tea tree oil helps however I'm a bit skeptical, after all it can either make it better or worse and I really dont want to risk the latter. Anonymoushttps://www.blogger.com/profile/02306771195788685058noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-67822935090615058152014-11-11T09:33:50.299-08:002014-11-11T09:33:50.299-08:00Hi there, I just checked her website (http://www.s...Hi there, I just checked her website (http://www.sato-shonika.com/), but it seems that there is no inpatient facility at her clinic. The website says that you have to make an appointment in advance if you would like to visit the clinic. <br />Here is some info of her clinic.<br /><br />Sato Shonika<br /><br />Tel: +81 120-81-3285 (for booking)<br />Opening hours:<br />8:30~11:30/16:30~19:00<br />closed on Sundays<br /><br />Map:<br />https://goo.gl/maps/tW17U<br /><br />Let me know if you need any further information :)<br />Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-8701653325889588862014-11-09T10:51:29.081-08:002014-11-09T10:51:29.081-08:00Hi Tommy,
Do the Dr's Sato accept internationa...Hi Tommy,<br />Do the Dr's Sato accept international patients for inpatient?<br />I am quite interested in the female Dr. Sato that treats pediatric patients. My daughter is 3 and we strongly believe she has tsa. Is there a way to communicate with her blog regarding pediatric patients?. Thank you. I am sincerely happy that you posted this information. The more legitimate research there is the more other countries will follow suit. We just need a flow of information. Hopefully the last paper they released will help make this move.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-41201878896020091962014-10-17T16:00:25.698-07:002014-10-17T16:00:25.698-07:00Hi there, I'm sorry but I cannot answer your q...Hi there, I'm sorry but I cannot answer your questions as I'm not a medical professional and I quite simply don't have the answers. As I wrote in my post, some TSW docs quite strongly recommend MW. But it's not my policy to tell people what they should do - if you feel comfortable trying MW, then try it. If not, then you don't have to. Best wishes for your healing. Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-33366699658680094592014-08-30T10:59:19.863-07:002014-08-30T10:59:19.863-07:00I am just starting my TSW and MW withdrawal , I wa...I am just starting my TSW and MW withdrawal , I wasn't sire weather or not to start my MW yet as I am in the middle of a huge flare up which I why I decided on TSW to start off with. However because of the moisturiser I feel that my skin isnt strong enough to heal or when I itch it is easily damaged because of the moisturiser. When is best to do MW and also when the TSW is over will the previous underlying eczema be there and still be a problem?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-28089692039428545412014-05-28T23:57:46.260-07:002014-05-28T23:57:46.260-07:00Hi Beck, I used to shower once a day - although wh...Hi Beck, I used to shower once a day - although when my skin was really bad, I showered only once in a couple of days as I couldn't bear the pain of skin drying up after shower/bath. In retrospective, I probably should've showered once everyday. Hope this helps!Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-69370034853559082452014-05-28T03:07:21.183-07:002014-05-28T03:07:21.183-07:00Hi Tommy, would you share how many time you shower...Hi Tommy, would you share how many time you shower/bath a day during the MW?Becknoreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-1153036703722542242014-05-12T07:43:52.594-07:002014-05-12T07:43:52.594-07:00Hi, after reading for a while about TSW i decided ...Hi, after reading for a while about TSW i decided to start it along with MW.But I cannot imagine not doing anything at all about the dry skin.I will take dead sea salt baths 30 minutes a day.But after that do you really suggest not to put anything on my skin at all,and not even to drink a lot of water?I dont think I would be able to make it using dead sea salt only.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-52535414772450469252013-11-22T04:34:48.526-08:002013-11-22T04:34:48.526-08:00Hello Leslie,
Thank you for your comment. I'm...Hello Leslie, <br />Thank you for your comment. I'm glad that you found the information useful and moisturiser withdrawal is working well for you :) xxxTommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-33522771857477136822013-11-19T01:18:14.148-08:002013-11-19T01:18:14.148-08:00Hi Tommy,
I thank you for bringing this valuable ...Hi Tommy,<br /><br />I thank you for bringing this valuable source of information from Japan. It is a waste that I do not speak/read japanese as there are so many medical publications in Japanese that could be useful to TSW sufferers. <br /><br />I myself have stopped moisturizing on a hunch and there has been nothing but great improvement!Leslie Chuahttp://saynototopicalsteroids.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-89023827163430600182013-10-25T21:17:09.132-07:002013-10-25T21:17:09.132-07:00Thank you Dan for sharing the information! That...Thank you Dan for sharing the information! That's really useful! :) xTommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-6592224260863761472013-10-24T19:23:11.638-07:002013-10-24T19:23:11.638-07:00I exchanged a few emails with Dr. Fukaya just last...I exchanged a few emails with Dr. Fukaya just last night. His comments on diet, moisturizer withdrawal, the adrenal glands, etc are also very interesting. He says the adrenal glands function normally in most TSA cases, and diet has little effect. He also says he agrees with Dr. Sato in that moisturizer withdrawal speeds up TSW in certain cases. He is careful to point out that some people who try moisturizer withdrawal can’t handle it and go back to using TS, I assume due to the increased pain and suffering going moisturizer free causes in the early stages. He recommends moisturizer withdrawal if one feels strong enough to do it to shorten the TSW period. He also suggests using moisturizers at an older age after TSW is complete.<br /><br />http://mototsugufukaya.blogspot.jp/2013/07/a-report-about-biological-product-for.html#comment-form<br />Danhttps://www.blogger.com/profile/08567005251093371248noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-25550867567918999042013-10-18T21:51:56.380-07:002013-10-18T21:51:56.380-07:00Hi Tommy, my cousin's symptoms were mild. If h...Hi Tommy, my cousin's symptoms were mild. If he had used ts much longer, his withdrawal would have been more severe, and moisturizing likely wouldn't have been the best way to go. Maybe moisturizing can be useful in mild cases. However, knowing what I know now, I would have not done either if I were my cousin and if the rash continued to bother me I would look for the root cause and treat it from that perspective.Danhttps://www.blogger.com/profile/08567005251093371248noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-88829070840131698942013-10-18T18:18:53.390-07:002013-10-18T18:18:53.390-07:00Hello Dan, thank you very much for sharing the inf...Hello Dan, thank you very much for sharing the information. It's very useful. I'm glad to know your cousin got over with TSW relatively easily. I agree with you on not using moisturiser in the early stage of TSW. What I'm not sure about is use of them in the later stage of TSW. Docs on the event told us to stay cautious about starting moisturisers even after TSW, as skin condition may relapse because of them. They said they've seen many of such cases. I'm finding it hard to completely stay away from moisturisers so long myself. I know your cousin healed while using moisturisers throughout TSW, and I'm just wondering what his severity of TSW symptoms was. If it was mild, that agrees with what Dr. Sato said about 10% of people healing without MW... Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-55708015243898006202013-10-18T16:29:44.882-07:002013-10-18T16:29:44.882-07:00I want to share what I think is very valuable form...I want to share what I think is very valuable formation on MW that I had just learned a couple days ago when I was out of town visiting relatives. My cousin told me he had a very small rash several years ago and his doctor gave him ts to use on it. After some time went by he went back in and complained the rash was starting to pop up in different areas. His doctor told him to stop using the ts and use a lotion for a while and the rash will go away.<br /><br />So, my cousin did just that. He used curel, something I wouldn't use because of the ingredients, but the rash went completely away in about 6 months. He never did use ts long enough to suffer much, luckily because of what the doctor told him to do on the second visit.<br /><br />Knowing this and knowing how MW has worked so well for me early on in my own tsw, I have to conclude it is best to use moisturizers or lotions, mainly in later stages of tsw, but not in beginning stages. And, to cease using them when the rash finally does go away. I know this is against conventional wisdom but it is what it is.<br /><br />Now, I am even more convinced MW is the most optimum way to go in the beginning stages of tsw, depending on individual factors and severity of symptoms of course. Moisturizers keep the raw skin from healing. The skin needs to breathe so I believe that once all rashes are gone it is important to cease putting anything on the skin and allow it to do it's thing. I hope people find this info helpful. My conclusions are just that, my conclusions, and not meant as medical advice to anyone.Danhttps://www.blogger.com/profile/08567005251093371248noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-22866938610157239432013-10-15T01:35:01.493-07:002013-10-15T01:35:01.493-07:00Hi Dan, I just replied to Claire's comment on ...Hi Dan, I just replied to Claire's comment on that one. This is only my impression but I thought what they meant was if you don't withdraw from moisturiser it's possible that you won't complete healing or you do heal but may relapse in the future. I don't know if there is any data on this, as I would imagine that it's hard to actually compare healing speed with or without moisturiser through TSW when every TSW is different. You can ask on Atopic's Facebook forum if you are interested. <br /><br />https://www.facebook.com/atopic.info<br /><br />Hope this helps :)Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-44015718870089563402013-10-15T01:01:34.875-07:002013-10-15T01:01:34.875-07:00Hi Claire, thank you for letting me know about goo...Hi Claire, thank you for letting me know about google translation! <br />From the impression I got from their presentation, moisturiser withdrawal is not something to speed up the healing process - they explained it more like something 'essential' to heal your skin. In other words, they sounded like if you don't withdraw from moisturiser it's possible that you won't complete healing or you do heal but may relapse in the future. I don't know if there is any stats on this but you can ask on Facebook or their official forum.<br /><br />https://www.facebook.com/atopic.info<br /><br />Hope this helps :)Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-72862287422432745832013-10-13T08:52:34.553-07:002013-10-13T08:52:34.553-07:00I'm not quite clear on that. Does it actually ...I'm not quite clear on that. Does it actually speed up the healing process? If so, by how much?Danhttps://www.blogger.com/profile/08567005251093371248noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-43074334517881589792013-10-12T15:59:45.163-07:002013-10-12T15:59:45.163-07:00Hiya, so great to see the word getting out. oh, an...Hiya, so great to see the word getting out. oh, and i noticed if you go on the petition page, you can click on google translate so are still able to sign it :) very intriguing the non moisturing and does it speed up the process for healing, were there any statisctics on it and time frames of the patients that healed. Would be interesting to know, but dont think i could be quite brave enough to stop them altogether.Anonymoushttps://www.blogger.com/profile/16370251590125106480noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-56599503397249762742013-10-10T14:16:05.227-07:002013-10-10T14:16:05.227-07:00Tommy, that is what I figured but wanted to make s...Tommy, that is what I figured but wanted to make sure. Thank you very very much. DanDanhttps://www.blogger.com/profile/08567005251093371248noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-7557362626030374252013-10-10T01:18:54.652-07:002013-10-10T01:18:54.652-07:00Hello Dan, I checked the leaflet I was given. It s...Hello Dan, I checked the leaflet I was given. It says 'moisturisers' here mean using emollients, creams, lotions, oils, thick bandages, staying in bed all day, taking a long/frequent bath, make-up, picking up scabs, wiping off ooze and drinking too much water. Hope this helps.Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-71360261873619640672013-10-09T14:32:52.785-07:002013-10-09T14:32:52.785-07:00Tommy, thank you very much for posting this. I was...Tommy, thank you very much for posting this. I was wondering if you could clarify what you said, "They explained that only about 10% of TSW patients healed without moisturiser withdrawal, and they were all mild case patients. TSW patients who recover well are usually doing moisturiser withdrawal strictly, according to the doctors." When you say moisturizer withdrawal, does that include emollients, humectants, or protectants as well? As in using nothing at all, or just not using moisturizers.Danhttps://www.blogger.com/profile/08567005251093371248noreply@blogger.com