tag:blogger.com,1999:blog-1632585507201168859.post8170429117345808060..comments2024-02-08T04:23:20.884-08:00Comments on Skin of Rose - Topical Steroids & Protopic Withdrawal: Another TSW Doctors to KnowTommyhttp://www.blogger.com/profile/13556416359993220028noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-1632585507201168859.post-71148819489188851632013-11-22T04:39:19.916-08:002013-11-22T04:39:19.916-08:00Hello Ross, the lotion worked well on my thinned s...Hello Ross, the lotion worked well on my thinned skin. You can see my before/after pics on http://skinofrose.blogspot.jp/2013/06/dr-fukayas-skin-repair-lotion-now.html . Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-73511023802635745132013-11-16T13:47:13.236-08:002013-11-16T13:47:13.236-08:00Hi everyone, does anybody who's skin has thinn...Hi everyone, does anybody who's skin has thinned through steroids found that Dr Fukaya's lotion has reversed this and thickened the skin, even if it is only slightly? RossAnonymoushttps://www.blogger.com/profile/10742334082178138005noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-56606208214470688472013-10-18T18:30:05.368-07:002013-10-18T18:30:05.368-07:00Hello Rosemary, I'm so glad to hear that you&#...Hello Rosemary, I'm so glad to hear that you're getting better and better :) I know how afraid it feels to try something new on skin at first - I was the same and found Dr. Fukaya's lotion so un-irritating! I wish you speedy, steady healing. xTommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-58828249113000338032013-10-18T12:58:14.131-07:002013-10-18T12:58:14.131-07:00I thank you so much for your reply. You are doing...I thank you so much for your reply. You are doing such a wonderful thing by publishing this blog and providing so much useful information.<br />I have had dramatic results with Dr. Fukaya's lotion. But I have had quick results before--with Urea 10% lotion with topical steroids and later with CeraVe with topical steroids. Eventually each of them stopped working for me and I was left with just the steroids. I think they and the steroids thinned my skin and they had too many ingredients. I stopped everything 2-3 months ago and Dr. Fukaya's lotion is the first thing to touch my skin (except water) since then, so I am a little afraid. It is amazing. The "normal skin" near my "red patches" is so much healthier feeling and looking. My red areas are better too. I wore socks without discomfort for the first time since July.<br />RosemaryAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-67077221853036449592013-10-18T12:18:00.231-07:002013-10-18T12:18:00.231-07:00Hi Rosemary, thank you for your kind words. Regard...Hi Rosemary, thank you for your kind words. Regarding Dr. Fukaya's lotion, yes I am still comfortable using it, because I feel his lotion doesn't really moisturise my skin so much. In fact, he wrote in his blog that 'it never is a moisturizer but a kind of nutrient for keratinocytes'. If you read his blog post '<br />Is moisturizing really a help to cure?', it looks like that Dr. Fukaya admits some benefits of non-moisturiser too. About scratching arms, I'm sorry I must have put it in a wrong way - I don't especially find it 'useful' but I don't mind scratching so I don't really try to hold it. The conference didn't change my mind on this. When I come to think of it, in Dr. Sato's book he said something like 'you don't need to hold scratching because skin should heal no matter what'. And I find this is true. <br /><br />Hope this answers to your questions :)Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-55535412173583897162013-10-18T11:52:30.816-07:002013-10-18T11:52:30.816-07:00Thank you for your comment:) Glad you found it use...Thank you for your comment:) Glad you found it useful. Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-55193419208246896012013-10-18T10:08:48.619-07:002013-10-18T10:08:48.619-07:00This is such a contribution to our understanding. ...This is such a contribution to our understanding. I thank you very much.<br />I have a few question for you. Given what you heard at this conference about "Moisturizer Withdrawal", do you still feel comfortable using Dr. Fukaya's lotion? Also, in an earlier post you mentioned scratching your arms as useful. Did this conference change your thinking about this? <br />Rosemary Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-39112473856039560962013-10-08T15:53:52.904-07:002013-10-08T15:53:52.904-07:00Thank you for invaluable information!Thank you for invaluable information!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-37137576393225108422013-09-29T17:20:59.835-07:002013-09-29T17:20:59.835-07:00Hi Lisa, ah thank you for your kind words. Because...Hi Lisa, ah thank you for your kind words. Because English isn't my native language, I am constantly worried if my blog posts make any sense to readers. English is so hard... I did have a lot of worries and doubts. I'm still trying to figure out what's best for my skin by trial and error. I see scaling as a sign of healing. I know it's so annoying and lasts like forever, yet it's a necessary step for your skin to recover. It can fall anytime, in fact in my case it fell all the time! Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-44411873164704154142013-09-29T10:30:40.809-07:002013-09-29T10:30:40.809-07:00Hello Minnie-Cat, thank you so much for your comme...Hello Minnie-Cat, thank you so much for your comment. I'm glad you found my blog useful :) If you have a chance to come to Japan, it's a good idea to visit his hospital in Osaka. I've never been to his hospital, but I definitely would if I have my fifth rebound in the future (hopefully it won't happen!). I don't know how much it's going to cost without National Insurance or if Dr. Sato speaks English, but if you do decide to visit his hospital I can try to find out those info for you. Dou itashi mashite :) xTommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-75866388166406143542013-09-27T07:12:04.218-07:002013-09-27T07:12:04.218-07:00Dear Tommy! Thank you for all the posts! I found y...Dear Tommy! Thank you for all the posts! I found your blog maybe month ago. Ans i am so amazed by how beautiful your skin looks now! I'm in TSW for about 16 months,and still having hard times. Your last post about Dr.Sato is just great! I even thought maybe i could visit the clinici,if it will possible for me. I even thinking about restart my japanese lessons.<br /> Doumo arigatou gozaimasu!Minnie-Cathttps://www.blogger.com/profile/17073733765552857636noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-62555905806301086442013-09-25T16:38:18.952-07:002013-09-25T16:38:18.952-07:00Thanks Tommy.
I go on your blog alot of times and ...Thanks Tommy.<br />I go on your blog alot of times and re-read all your post.<br />your words give me comfort.<br />It's so hard to accept this tsw stuff. did you ever wonder if it was just eczema? and if it was just eczema does it naturally just go away on it's own?? i feel like i am chasing my problem. is it laundry soap? is it face wash? is it this? did you have these worries and doubts?<br />i am almost in month 5 and i am having a hard time. when your scales were falling off, did they just fall off anytime? i barely shed. but i see lots of dry flakes and scales and rough skin. i am not a happy camper :(Lisa Leunghttps://www.blogger.com/profile/03940546774122967042noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-79149697364467650272013-09-23T22:19:23.688-07:002013-09-23T22:19:23.688-07:00Hi Lisa, yes I did have a lot of flares. My worst ...Hi Lisa, yes I did have a lot of flares. My worst month was probably Month 5 & 6 & 7 this time, but before my skin reached the worst point on the 1st month of TSW. So I think it varies. I only noticed improvements April this year, but my case this time was a really slow healing process and many people seem to heal quicker than me. I can completely relate to you Lisa, I still cannot say that I accepted my withdrawal self... after going through withdrawal 4 times! Yeah I hope we can meet up one day when you get better. I bet we will have a lot of laughs about this TSW thing! xTommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-71821871440749334242013-09-23T22:08:56.244-07:002013-09-23T22:08:56.244-07:00Hi Sandra :) Thank you for your kind comment! I un...Hi Sandra :) Thank you for your kind comment! I understand that moisturiser withdrawal is as hard as TSW, but according to those docs it is essential in most cases. Maybe tapering off moisturisers is easier, but don't push yourself too hard. Once you get to the point your skin is fine without moisturisers, you will feel your skin becomes stronger (and saving some time and money too!) xTommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-81012044175947817922013-09-23T03:49:30.258-07:002013-09-23T03:49:30.258-07:00Tommy, your posts are always so informative. You ...Tommy, your posts are always so informative. You are definitely looking great! I tried withdrawing from moisturizers awhile ago, but it was so hard. I hope I can get to that point soon.Anonymoushttps://www.blogger.com/profile/12164641886104456219noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-9087623592036921862013-09-21T09:52:56.687-07:002013-09-21T09:52:56.687-07:00If i could i really would love to meet u.
Maybe wh...If i could i really would love to meet u.<br />Maybe when I'm a bit better. Im still having a rough time at 4 months. Did u have l ots of flares? What would you say was your worst months? At what month did you really notice improveMents?<br />I am at a stage where I'm beginning to accept it a bit more. The accepting part is hard.Lisa Leunghttps://www.blogger.com/profile/03940546774122967042noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-17911576956410970202013-09-21T08:21:52.916-07:002013-09-21T08:21:52.916-07:00Thank you so much for your kind words, Lisa :) How...Thank you so much for your kind words, Lisa :) How are you doing these days? I remember you had a tough period about 2 months ago. I hope you're seeing some progress. I'm in Japan for another month, and then will go back to the UK. Luckily I could take some work with me to Japan. If you have a chance to visit Japan, I'll give you the list of TSW docs here! :)x Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-47511910147265165012013-09-20T09:25:44.705-07:002013-09-20T09:25:44.705-07:00HI tommy,
i like how your map says Japan is known ...HI tommy,<br />i like how your map says Japan is known for the best toilets in the world.<br />i would love to go visit japan.<br />are you still living there? or are you in UK right now?<br />are you working?<br />i love your blog.<br />when i am down i read your entries and look at your pictures and you give me hope!Lisa Leunghttps://www.blogger.com/profile/03940546774122967042noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-92046944447632525742013-09-19T18:45:07.317-07:002013-09-19T18:45:07.317-07:00Thank you Wendy:) Yeah, after meeting them and the...Thank you Wendy:) Yeah, after meeting them and their patients in person, I do think of them as asylums for TSW sufferers. I will post more on the event soon. Thank you for stopping by x Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-43968763971594917392013-09-19T14:08:02.601-07:002013-09-19T14:08:02.601-07:00This is so interesting Tommy, imagine healing cent...This is so interesting Tommy, imagine healing centres for tsw sufferers are alive and well in Japan. They must be going against the grain too, so it's some achievement. Keen to hear more, thanks for posting! wendyhttps://www.blogger.com/profile/07440273949330454675noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-86825991803067922152013-09-19T06:37:08.811-07:002013-09-19T06:37:08.811-07:00Thank you for your kind words Ahfaye! Glad to know...Thank you for your kind words Ahfaye! Glad to know you found my blog useful:) I will definitely write about the presentation soon. One of the things they emphasised during the presentation was moisturiser withdrawal was 'essential' rather than 'encouraged'. Wishing you all the best with your recovery. You WILL get there!:) x Tommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-9768658697109971112013-09-19T06:31:35.099-07:002013-09-19T06:31:35.099-07:00Thank you for your comment Louise! He does look gr...Thank you for your comment Louise! He does look great, doesn't he? I heard that both he and his wife used to have eczema too. I really believe that more people should know about them. Their achievements are absolutely phenomenal in Japan. xTommyhttps://www.blogger.com/profile/13556416359993220028noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-71420839118140987542013-09-16T17:08:02.979-07:002013-09-16T17:08:02.979-07:00Thank you so much for this. I can't wait to he...Thank you so much for this. I can't wait to hear more about the presentation. Your posts has helped me heaps going through TSW at the moment. I'm in my 3rd month now and not moisturising after reading your post about what Dr. Sato has said. It's definitely better not putting anything on my skin though painful but more bearable then itching to death with moisturisers blocking my skin pores.<br />You look amazing now, I hope I can be like you soon! <br />xxx <br />ahfaye<br />byebyesteroids.blogspot.com-ahfaye-https://www.blogger.com/profile/00328599687595528424noreply@blogger.comtag:blogger.com,1999:blog-1632585507201168859.post-38906726175474581272013-09-16T10:58:33.853-07:002013-09-16T10:58:33.853-07:00They sound great. Kenji looks amazing for his age,...They sound great. Kenji looks amazing for his age, proof that he must be a great dermatologist! These guys should be mentioned on itsan.Louisehttps://www.blogger.com/profile/15469340247407868766noreply@blogger.com